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WHERE TO GET HELP: VOLUNTARY AND COMMUNITY GROUPS
These are non-profit-making bodies, often funded by donations and with some central or local government top-up. For many carers they are the lifeline that the statutory services have failed to provide. They help in many ways, ranging from the advice given to carers and the setting up of carers' groups to practical help at home and emotional support and counseling.
Some groups are interested in one particular area of disability, and they then help with information on that condition relevant often to both sufferer and carer. They may also take on the local and national 'face' of the sufferers, representing their interests, especially at planning stages. Many carers and sufferers find great strength in joining a group that has others coping with the same problem. Others find that caring has been an isolating experience; on joining a carers' group they suddenly find others who have experienced the same problems and indeed overcome them. These carers' groups often organize social events - they appreciate the necessity of an evening off for those for whom free time is normally denied them.
The voluntary sector though has two unequal halves. There are the now national organizations with tight resources and the expertise to advice on benefits, financial help, etc. Then there are the very local schemes providing small-scale but none the less invaluable help - sitting services, emotional support at times of crisis such as bereavement or illness, and all carried out on a shoestring.
Finding out what is available can sometimes be difficult. Most places have a central voluntary office, called by many different names - Voluntary Service Council, Voluntary Action Group, etc. These are usually in the Yellow Pages under 'Charitable and benevolent organizations'. Other areas have a voluntary services organizer, and again this person may be found in the telephone book, or may be known by social workers, GPs, Citizens Advice Bureaux, local voluntary groups, e.g. Age Concern, Alzheimer's Disease Society, etc. Increasingly, public libraries are becoming places to get local queries answered.
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GENERAL HEALTH
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